Angelman Syndrome Portal

Welcome to the International Angelman Syndrome Organisation (IASO)

IASO Second World Conference: July 2-5, 2003, in Washington, DC, USA. Some conference presentations will be made available - see Conference Presentations.

Our Foundations
In July, 1997, at the Angelman Syndrome Foundation (ASF) Conference in Seattle, Washington, USA, representatives from several countries met and discussed the establishment of an International Angelman Syndrome Organisation (IASO). They decided to set up a Working Group which would launch preparations for the first meeting of the IASO. In November, 1997, a letter inviting national Angelman syndrome organisations was sent by the IASO Working Group to representatives from 22 countries. The IASO was founded on the 6th of August, 1998 at the Canadian Angelman Syndrome Society (CASS) international conference, held in Ottawa, Ontario, Canada.

Our Purpose
The IASO was founded as a world-wide 'umbrella' organisation of national Angelman syndrome associations. It is politically neutral, with no discrimination as to race, sex, colour or religion, and is non-profit-making. One of its main duties is to help translate and distribute written material on AS in several languages. To fulfill this goal in practice, it will need the help of many individuals who are prepared to do the translating. This has already been done privately, on a small scale in connection with some web sites devoted to AS. See: Statement of Purpose

The Officials of the IASO
At the General Meeting of the IASO, held in Washington DC, USA, July 1, 2003, elected was Mrs. Mélanie Barton (Germany) for President and Mrs. Adela Montepagano (Argentina) for Vice-President. Ten other Board members were also elected, all for a term of 3 years. Due to the geographical distances, they meet over the Internet. See: Board Members.

1st World Conference
In 2000 The 1st World Conference of the IASO was held in Tampere, Finland from Tuesday, July 4, 2000, through to Saturday, July 8, 2000. It was attended by 264 participants. Our thanks must be extended to the Finnish Angelman Syndrome Society (FASS) for hosting a most memorable and extraordinary experience. Our thanks must be extended to the Finnish Angelman Syndrome Society (FASS) for hosting a most memorable and extraordinary experience. See: 1st World Conference Presentations and Pictures from the 1st World Conference

2nd World Conference
The 2nd World Conference of the IASO was held jointly with the Angelman Syndrome Foundation (ASF) Eighth Biennial Conference at the Grand Hyatt Hotel Washington, on Capitol Hill, Washington D.C., USA. from Tuesday, July 2, through to Saturday, July 5, 2003. It was attended by ca. 500 participants. Our thanks must be extended to the ASF for hosting a wonderful and most informative conference. See: Conference Presentations.

3rd World Conference in 2006
 The Board of the IASO will soon issue to its member associations a call for bids to host the 3rd World Conference in the summer of 2006.

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